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BACKGROUND
Biallelic loss-of-function variants in NCF1 lead to reactive oxygen species deficiency and chronic granulomatous disease (CGD). Heterozygosity for the p.Arg90His variant in NCF1 has been associated with susceptibility to systemic lupus erythematosus, rheumatoid arthritis, and Sjögren's syndrome in adult patients. This study demonstrates the association of the homozygous p.Arg90His variant with interferonopathy with features of autoinflammation and autoimmunity in a pediatric patient.
CASE PRESENTATION
A 5-year old female of Indian ancestry with early-onset recurrent fever and headache, and persistently elevated antinuclear, anti-Ro, and anti-La antibodies was found to carry the homozygous p.Arg90His variant in NCF1 through exome sequencing. Her unaffected parents and three other siblings were carriers for the mutant allele. Because the presence of two NCF1 pseudogenes, this variant was confirmed by independent genotyping methods. Her intracellular neutrophil oxidative burst and NCF1 expression levels were normal, and no clinical features of CGD were apparent. Gene expression analysis in peripheral blood detected an interferon gene expression signature, which was further supported by cytokine analyses of supernatants of cultured patient's cells. These findings suggested that her inflammatory disease is at least in part mediated by type I interferons. While her fever episodes responded well to systemic steroids, treatment with the JAK inhibitor tofacitinib resulted in decreased serum ferritin levels and reduced frequency of fevers.
CONCLUSION
Homozygosity for p.Arg90His in NCF1 should be considered contributory in young patients with an atypical systemic inflammatory antecedent phenotype that may evolve into autoimmunity later in life. The complex genomic organization of NCF1 poses a difficulty for high-throughput genotyping techniques and variants in this gene should be carefully evaluated when using the next generation and Sanger sequencing technologies. The p.Arg90His variant is found at a variable allele frequency in different populations, and is higher in people of South East Asian ancestry. In complex genetic diseases such as SLE, other rare and common susceptibility alleles might be necessary for the full disease expressivity.
In times of climatic or political grievances that affect not only human life worldwide, but also the environment and the economic situation of a country, a change in the way of thinking about tourism is beginning and the sector of ecotourism is also becoming increasingly important in Germany. The applicability of this form of tourism in the East African destination Kenya in the form of a travel package that is both partly unique and can be designed individually describes the subject matter of this elaboration and is illustrated using the example of the charitable organization Mully Children's Family and the related registered tourism company, MCF Africa Safaris. The underlying research aims to determine how to transform the organisation's own tree planting initiative into a niche tourist market and how this must be geared to gain the interest of the German eco-tourist. Based on the evaluation of the research results, there is high potential, which is dedicated to the implementation of a form of travel consisting of the active support of the named charity and its initiative as well as individually selectable holiday activities in the target market Kenya. As a result, there are basic prerequisites, the consideration of which is essential for the successful integration of the so-called niche market tree planting and the branch-specific nature of ecotourism in the Kenyan travel market.
Datenschutz und informationelle Selbstbestimmung sind Bestandteile aktueller Leitbilder einer Digitalen Bildung in der Schule. Im Kontext der Schulschließungen und der vorrangigen Nutzung digitaler Medien zeigte sich jedoch, dass Datenschutz weder als Thema noch als Gestaltungsprinzip digitaler Lernumgebungen in der bildungsadministrativen und pädagogisch-praktischen Schulwirklichkeit systematisch verankert ist. Die Diskrepanz zwischen aktuellen Leitbildern einer digitalen Bildung und der sichtbar problematischen Praxis des digitalen Notfalldistanzunterrichts markiert den Ausgangspunkt des Beitrages, der sich der übergeordneten Frage widmet, welche Herausforderungen sich bei der Realisierung von Datenschutz in der Schul- und Unterrichtswirklichkeit in einer digital geprägten Welt stellen. Im Sinne einer Problemfeldanalyse werden prototypische Handlungsprobleme der Schule herausgearbeitet. Fokussiert betrachtet werden exemplarische Herausforderungen und Anforderungen an Technologien und Akteur:innen der inneren und äußeren Schulentwicklung auf den Ebenen der Unterrichtsentwicklung, der Personalentwicklung, der Technologieentwicklung und der Organisationsentwicklung.
Sprachassistenten wie Alexa oder Google Assistant sind aus dem Alltag vieler VerbraucherInnen nicht mehr wegzudenken. Sie überzeugen insbesondere durch die sprachbasierte und somit freihändige Steuerung und mitunter auch den unterhaltsamen Charakter. Als häuslicher Lebensmittelpunkt sind die häufigsten Aufstellungsorte das Wohnzimmer und die Küche, da sich Haushaltsmitglieder dort die meiste Zeit aufhalten und das alltägliche Leben abspielt. Dies bedeutet allerdings ebenso, dass an diesen Orten potenziell viele Daten erfasst und gesammelt werden können, die nicht für den Sprachassistenten bestimmt sind. Demzufolge ist nicht auszuschließen, dass der Sprachassistent – wenn auch versehentlich – durch Gespräche oder Geräusche aktiviert wird und Aufnahmen speichert, selbst wenn eine Aktivierung unbewusst von Anwesenden bzw. von anderen Geräten (z. B. Fernseher) erfolgt oder aus anderen Räumen kommt. Im Rahmen eines Forschungsprojekts haben wir dazu NutzerInnen über Ihre Nutzungs- und Aufstellungspraktiken der Sprachassistenten befragt und zudem einen Prototyp getestet, der die gespeicherten Interaktionen mit dem Sprachassistenten sichtbar macht. Dieser Beitrag präsentiert basierend auf den Erkenntnissen aus den Interviews und abgeleiteten Leitfäden aus den darauffolgenden Nutzungstests des Prototyps eine Anwendung zur Beantragung und Visualisierung der Interaktionsdaten mit dem Sprachassistenten. Diese ermöglicht es, Interaktionen und die damit zusammenhängende Situation darzustellen, indem sie zu jeder Interaktion die Zeit, das verwendete Gerät sowie den Befehl wiedergibt und unerwartete Verhaltensweisen wie die versehentliche oder falsche Aktivierung sichtbar macht. Dadurch möchten wir VerbraucherInnen für die Fehleranfälligkeit dieser Geräte sensibilisieren und einen selbstbestimmteren und sichereren Umgang ermöglichen.
Most people use disaster apps infrequently, primarily only in situations of turmoil, when they are physically or emotionally vulnerable. Personal data may be necessary to help them, data protections may be waived. In some circumstances, free movement and liberties may be curtailed for public protection, as was seen in the current COVID pandemic. Consuming and producing disaster data can deepen problems arising at the confluence of surveillance and disaster capitalism, where data has become a tool for solutionist instrumentarian power (Zuboff 2019, Klein 2008) and part of a destructive mode of one world worlding (Law 2015, Escobar 2020). The special use of disaster apps prompts us to ask what role consumer protection could play in safeguarding democratic liberties. Within this work, a set of current approaches are briefly reviewed and two case studies are presented of what we call appropriation or design against datafication. These combine document analysis and literature research with several months of online and field ethnographic observation. The first case study examines disaster app use in response to the 2010 Haiti earthquake, the second explores COVID Contact Tracing in Taiwan in 2020/21. Against this backdrop we ask, ‘how could and how should consumer protection respond to problems of surveillance disaster capitalism?’ Drawing on our work with the is IT ethical? Exchange, a co-designed community platform and knowledge exchange for disaster information sharing, and a Societal Readiness Assessment Framework that we are developing alongside it, we explore how co-design methodologies could help define answers.
Personal values and electronic waste disposal behaviours among households in Cape Coast Metropolis
(2021)
The study examined social values that accounted for electronic waste recycling and reuse behaviours. Via a crosscommunity survey of 193 of households in the Cape Coast Metropolis, a correlational design was employed in the study. Partial Least Squares-Structural equation modelling was used to analyse the data. Results from the analysis showed the influence of altruistic values (β = 0.275, p < 0.05) on reuse behaviour. Similarly, environmental awareness (β = 0.213, p<0.05) also showed significant influence on participation in recycling, whereas psychological ownership significantly influenced both reuse (β = 0.319, p < 0.05), and participation in recycling (β = 0.339, p < 0.05), The joint significance of altruistic values, environmental awareness and psychological ownership to explaining recycling participation was 21.3% (R2 = 0.213, p < 0.05) and that of reuse was 24.6% (R2 = 0.246, p < 0.05). The results of the study showed that individuals who are knowledgeable about the state of their environment were more likely to participate in recycling. On the other hand, individuals with altruistic values preferred giving unwanted electronic equipment to others for reuse. Altruistic values are particularly true of collectivist cultural orientation. Psychological ownership was significant in predicting both behaviours, however, the effect size on reuse was moderate. Psychological ownership due to waste aversion and frugality lead consumers to keep, and subsequently give to close relatives in their social network. It was recommended that individuals should be encouraged to patronize formal recycling services. as a way to show concern for the well-being of others by reducing pollution due to improper waste treatment. Again, like in developed economies, second-hand collection systems for unwanted electronic products can be developed, and made convenient for individuals with reusable items, who may be willing to donate or even resell.
This study sought to apply the Structure Conduct Performance paradigm to Africa´s air transport landscape in general. To do that, it examines the past, present, and future expectations of four of Sub-Saharan Africa’s biggest aviation economies, namely South Africa, Kenya, Ethiopia, and Nigeria. Secondary data containing historical passenger traffic was analysed, and predictions for growth in the next ten years were proposed. The findings suggest that the experience of the existing liberalization initiatives, such as the Yamoussoukro Declaration (YD), has produced less than expected benefits. However, the future of aviation in Africa is somewhat positive, with a growth trajectory expected to follow a linear and gradual path supported by various initiatives, including the Single African Air Transport Market (SAATM) and the African Continental Free Trade Area (AFCTA). The study’s contribution is to illuminate the current discourse on the aviation sector in Africa through the Structure-Conduct-Performance theory paradigm and suggests a conceptual model that could be applied to future studies relating to aviation in Africa.
Rural Social Entrepreneurship (RSE) is considered an essential factor for achieving Sustainable Rural Development (SRD) and improving rural people's socio-economic status through increasing production, productivity, reducing unemployment, and accelerating the progress in achieving SDGs. The paper aims at examining the role of social entrepreneurship in achieving (SRD) in Sudan with reference to Wad Balal Project for investment and rural development in Gezira State, which established in 2005 in small villages in Gezira State through mobilizing of local savings and resources for creating job opportunities, sponsoring poor households, improving the infrastructures, and reducing poverty. The study depends on cross-sectional data collected through a questionnaire and focus group discussion from 100 head of households in the village under research. A questionnaire is internally consistent, and its questions are stable. Frequencies and percentages have been used for describing the basic characteristics of the respondents. Statistical t-test was adopted to test the opinions of respondents about the role of the project based on the Likert scale. The results revealed that the project has significantly increased the opportunities of job and training as well as household income, the results also confirmed that the project has improved the status of education and health services in the village. The project has extended and established many branches; the project also diversified its investment to cover more kinds of investments, the project reinvested 50% of its profits and directed the rest to charity, and social services in the village, many lessons can be learned from the project story. The research recommended that a similar social entrepreneurship project can be generalized to more villages in Sudan and other developing countries to accelerate sustainable rural development. Local communities have to support similar initiatives for developing their villages.
A school leader’s achievement is not what they study in learning institutions but the way they organize themselves into problem solving and realistic decision making. While this includes some taught hard skills, the bulk of school activities rely on soft skills. Soft skills, however, are frequently neglected, although they play an important role in school principals’ daily operations as an instructional supervisor. This study aimed to examine the relationship between soft skills training and Principals' performance. The study adopted a cross-sectional mixed survey design. Using Yamane formulae, the sample comprised of 167 principals from 286 public secondary schools in Kiambu County. These were spread proportionally across all the 12 sub-counties in the County. The principal research instrument was primarily a questionnaire. The reliability of the instrument using the Cronbach Alpha coefficient was deemed reasonable at.73. The findings showed that a substantial relationship exists between the training of the principal on soft skills and their good performance of the duties. The study suggests routine in-service training should be undertaken in the county to improve the development of soft skills. It is also advisable that undergraduate, postgraduate, or in-service training include soft skills as a unit, to build knowledge of the value of soft skills.
Research on entrepreneurial eco-systems is evolving with exhortations for empirical studies at regional and local levels to augment national surveys. The study, therefore, sought to explore the entrepreneurial eco-system of the Central Region, which is relatively well-endowed with natural resources but lags behind in economic advancement in Ghana. Through descriptive research design, quantitative data were collected using self-administered questionnaires from a convenience sample of 44 entrepreneurs under the presidential business support programme in the Central Region of Ghana, in 2019. Data were analysed, by conducting descriptive analysis such as means (M) and percentages and by exploratory factor analysis, with the IBM SPSS Version 25. Descriptive results of 37 valid responses showed that the respondents were satisfied, in varying degrees (M = 4.19-5.65), with 11 factors within the eco-system; the top three factors were demand, security and availability of raw materials. Respondents were, however, not satisfied with access to business development services, access to finance, rent charges and access to repairers of equipment and thus, pose as challenges to their entrepreneurial pursuits. Principal component analysis revealed inter-connectedness among the factors in the eco-system with strong loadings of measures of institutions and resource endowment under the two components of the solution. Based on the findings, it is concluded that the entrepreneurs surveyed were satisfied with more factors in the EES of the Central Region while they were dissatisfied with relatively few but critical factors in the EES, thereby posing as major challenges to their entrepreneurial activities. As an exploratory study, the findings suggest that the entrepreneurial eco-system of the Central Region of Ghana is, to some extent, supportive of entrepreneurial activities but has key challenges. To achieve maximum outcomes, policy interventions should collectively address, at a time, factors that interact strongly to influence entrepreneurship within the system.
Most economies across the globe rely on entrepreneurship for growth. There is evidence to suggest that entrepreneurship creates job opportunities and spurs economic growth and development (Pacheco, Dean, & Payne, 2010; Mojica, Gebremedhin, & Schaeffer, 2010, and Solomon, 2007). Even though entrepreneurship is one of the fastest growing education disciplines globally, researchers are still divided on what should be taught and how it should be taught in institutions of higher learning. Entrepreneurial decision-making is laced with uncertainty and drawbacks. Hence, entrepreneurship learners must be taught using practical and conceptual methodologies to equip them with the requisite knowledge and skill that will enable them to confront such challenges in their entrepreneurial activities. This calls for entrepreneurship teachers to be innovative and to also encourage their learners to be innovative as entrepreneurship involves the generation of new business ideas. This paper sought to examine teaching methodologies for entrepreneurship education in institutions of higher learning in Kenya. A mixed-method approach that involved triangulation as the main data collection technique was used. Interviews were administered with teachers and learners of entrepreneurial education in Kenya, with a view to identifying the most commonly used teaching methodologies of entrepreneurial education and their shortcomings. Course outlines and curricula borrowed from twenty (20) institutions of higher learning in Kenya were reviewed. Results indicate that entrepreneurial education in Kenya is largely theoretical and does not meet the needs of the modern entrepreneur. The paper therefore recommends innovative teaching methodologies of entrepreneurial education that can be utilised by the teacher to prepare students adequately to generate entrepreneurial ideas and to identify entrepreneurial opportunities. For this reason, the paper recommends the use of such methodologies as business plan generation, idea generation, innovation, creativity, networking, opportunity recognition, expecting and embracing failure, and adapting to change.
Experience made with free and open source software (FOSS) in the public research is shared with the community. The motivation for using and publishing FOSS is to increase visibility, transparancy and feedback quality while at the same time lowering software licensing costs. Also, the idea of giving back and returning a value plays a role. The most frequently given counter arguments are discussed. In the end, it’s important to embed FOSS publishing into the company’s strategy for the exploitation of scientific research results. To help with this, a checklist of criteria to indicate FOSS publishing is suggested. On the backround of wireless sensor networks, some case studies of FOSS contribution are detailed. The emphasis is on checking the original motivation and the spirit of FOSS back with the reality. Finally, further potential of publishing FOSS in the context of scientific research is identified.
This paper gives an overview of how we can benefit from using container technology in our academic work. It aims to be a starting point for fellow researchers which also think about applying these technologies. Hence, we focus on decribing our own experiences and motivations instead of proving hard scientific facts.
The purpose of this study is to research the antecedents of the sustainable travel decision-making of European travelers and thereby identify important lessons for the transition towards sustainable travel and tourism. The study is based on data collected through a representative survey, conducted in five European countries, with a sample of n = 5024 respondents. The results of descriptive statistics, EFA (Exploratory Factor Analysis) and FA (Factor Analysis) are presented in order to explore sustainable travel decision-making through environmental (policy-related and personal) attitudes and travel mode decision priorities in the European context. Furthermore, the study provides new evidence regarding the under-researched phenomenon of the attitude–behavior gap by presenting a model for the sustainability-oriented decision-making of travelers, including attitudes and travel mode priorities as antecedents. The results confirm the existence of moral licensing in travel decision-making, thereby extending the relevance of this theory into travel and tourism, which has not been done before. The denial of environmental issues is also being researched as regards its interaction with positive environmental attitudes, environmental travel mode priorities and non-environmental travel priorities, thereby advancing our understanding of the interplay between these categories. The interplay between the four categories furthers our understanding of the perplexity of travelers in terms of sustainable travel decision-making.
Künstliche Intelligenz im autonomen Fahrzeug verarbeitet enorme Mengen an Daten. Beim Betrieb eines solchen Fahrzeugs basiert jede Bewegung auf einer datenbasierten, automatisierten und adaptiven Entscheidungsfindung. Aber auch, um Regeln zur Erkennung und Entscheidung in komplexen Situationen wie den hochindividuellen Verkehrsszenarien entwickeln zu können (KI-Training), sind bereits beachtliche Datenmengen von Fahrzeugen im Realverkehr erforderlich – zum Beispiel Videosequenzen aus Kamerafahrten. Für das Training Künstlicher Intelligenz ist es aus Sicht der Fahrzeugentwicklung attraktiv, auf den Datenschatz zuzugreifen, den die Gesamtheit der Fahrzeuge im realen Anwendungskontext erzeugen kann. Als Nutzer:innen und Insassen sind Verbraucher:innen so Teil einer groß angelegten Testdatenerhebung durch Fahrzeughersteller und Anbieter. Das wirft Datenschutzfragen auf. Ziel des vorliegenden Beitrags ist es herauszuarbeiten, inwiefern sich hierdurch Implikationen für die Rechte und Freiheiten von Verbraucher:innen ergeben und welche Mechanismen das geltende Recht sowie aktuelle legislative Entwicklungen bereithalten, den „Datenhunger“ der KI mit den Interessen an Datensouveränität und informationeller Selbstbestimmung in Einklang und Ausgleich zu bringen. Im Fokus steht dabei insbesondere, wie Anforderungen schon im Produktdesign „mitgedacht“ werden und damit für Verbraucher:innen rechts- und vertrauensfördernd wirken können.
Kenya as a touristic destination is well known as an exotic country offering many different landscapes as well as the diversity of wildlife; this is typical for several African countries. To ensure a sustainable tourism development, different forms of tourism have to be considered. One of these forms could be eco-mountain bike cycling tours, as these tours are gaining in popularity, for example in Germany. The aim of this study was to obtain results regarding the market potential for mountain bike eco-tourism in Kenya. The up-and-coming tourism branch of mountain biking was examined in connection with the increasing demand for long-distance travel. The results of this study showed that mountain biking in exotic countries like Kenya has market potential in principle. However, it was also found that mountain biking alone is not a sufficient pull factor for tourists. The combination with other activities turned out to be promising. It was found that tourist packages that include mountain biking as an activity are perceived as attractive. Moreover, it was obtained that not only tourists who ride a mountain bike regularly are addressed as a target group. Even "regular" tourists find mountain biking an attractive (touristic) activity, especially in combination with game drives. Experts also assess the market potential for eco-mountain bike tourism as positive and find existing routes and accommodation attractive. The findings are giving indications for the possibilities to develop eco-mountain bike tourism as a touristic alternative and addition to existing touristic products.
One of the biggest challenges faced by many tech start-ups from developed markets is to have validated market-fit products/services and to see their solutions implemented. In several sectors, stringent regulations, and the law of handicap of head start at home can be hurdles that limit the development and even the survival potential of theses start-ups. Tech start-ups seeking implementation, learning, and legitimacy may have a solution in expanding into emerging markets. Emerging markets offer both business opportunities in sectors in need of new technologies as they are “fertile grounds” for developing and testing internationalisation business models. We present here a process designed to help tech start-ups to identify, access, shape and seize these opportunities and to overcome their own specificities and emerging markets specificities. The three phases of the proposed process cover entry node concept, partnership, and business, operating and revenue joint models’ development. DesignScience Research Paradigm is used for the design and evaluation of the process. To show the relevance of this process, a case study on the expansion in Morocco of a Dutch start-up active in e-health is used. The study shows the importance of the process for the embeddedness in a local relevant value network with a relevant adopter’s system, a key enabler to achieve time and cost-effective expansion in that specific business and institutional contexts. A pilot to assess the proposed models and evidence of benefits is under development. To boost their chances of growth tech start-ups from developed markets should consider expansion into emerging markets in their strategy. It would be beneficial that policy makers adopt a strategy by which to assist tech start-ups in accessing value networks in emerging markets. It is also important for policy makers from emerging markets to consider developing schemes to attract tech start-ups from developed markets.
Developing the Circular Economy in Uganda: Prospects for Academia-Public-Private-Partnerships
(2021)
Issues: Circular economy is a production system that optimizes the reusability of by-products/waste as raw materials. As the global population threatens to reach 9 billion by 2050, consumption levels grow proportionally, raising food, material, and energy demands. In Uganda, soil nutrient depletion and energy poverty are key challenges faced by urban and rural communities. Rampart depletion of natural resources calls for transit from the linear economic models towards sustainable production/consumption technologies. This study investigated prospects for APPP to optimize the reusability of by-products/waste as raw materials. Approach: Quantitative and qualitative tools were used to collect data via document analysis, interviews, and participant observations. The tools were administered to municipal authorities, private waste-collecting agencies in cities and municipalities; officials in Ministries of energy and Agriculture; officials in universities research units and entrepreneurs that deal in agricultural and energy products; officials from civil society organizations. Findings: there are a number of sustainability projects being undertaken by Universities and High schools, Government agencies, companies, and civil society organization isolation. Singlehandedly, individual agencies lack the requisite capacity to develop closed-loop production/consumption models. Analysis of a few successful RRR projects suggests that APPP is positioned to promote CE. Transiting towards a circular economy requires joint ventures to optimize human, technological, and financial resources and develop policy and institutional frameworks. In Uganda, recycling biotic by-products can promote environmental sustainability; reduce stress on natural resources; enable cost savings; promote green entrepreneurship, and create jobs/livelihoods. Conclusion: working jointly, CE could be enhanced via technical and business models by the academia, private capital investment by companies, community engagement by CSOs, and development of supportive policy and institutional frameworks to facilitate decision-making processes. The APPPs are positioned to use interactive platforms for creating awareness and promote sensitization about green values through education and multimedia communication platforms.
Dieses Dokument präsentiert eine Zusammenfassung der Dissertation der Autorin. In dieser Dissertation [Ha20] wurde ein neuartiger und hybrider Ansatz für die Scha ̈tzung der Intensität von Gesichtsmuskelbewegungen (Action Unit (AU)) vorgeschlagen und validiert. Dieser Ansatz basiert auf einer Gauß’schen Zustandsschätzung und kombiniert ein verformbares, AU-basiertes Gesichtsformmodell, ein viskoelastisches Modell der Gesichtsmuskelbewegung, mehrere erscheinungsbasierten AU-Klassifikatoren und eine Methode zur Erkennung von Gesichtspunkten. Es wurden mehrere Erweiterungen vorgeschlagen und in das Zustandsschätzungs-Framework integriert, um mit den personenspezifischen Eigenschaften sowie technischen und praktischen Herausforderungen umzugehen.Die mit der vorgeschlagenen Methode erzeugten AU-Intensitätsschätzungen wurden für die automatische Erkennung von Schmerzen und für die Analyse von Fahrerablenkung eingesetzt.
Hinreichende Datensouveränität gestaltet sich für Verbraucher:innen in der Praxis als äußerst schwierig. Die Europäische Datenschutzgrundverordnung garantiert umfassende Betroffenenrechte, die von verwantwortlichen Stellen durch technisch-organisatorische Maßnahmen umzusetzen sind. Traditionelle Vorgehensweisen wie die Bereitstellung länglicher Datenschutzerklärungen oder der ohne weitere Hilfestellungen angebotene Download von personenbezogenen Rohdaten werden dem Anspruch der informationellen Selbstbestimmung nicht gerecht. Die im Folgenden aufgezeigten neuen technischen Ansätze insbesondere KI-basierter Transparenz- und Auskunftsmodalitäten zeigen die Praktikabilität wirksamer und vielseitiger Mechanismen. Hierzu werden die relevanten Transparenzangaben teilautomatisiert extrahiert, maschinenlesbar repräsentiert und anschließend über diverse Kanäle wie virtuelle Assistenten oder die Anreicherung von Suchergebnissen ausgespielt. Ergänzt werden außerdem automatisierte und leicht zugängliche Methoden für Auskunftsersuchen und deren Aufbereitung nach Art. 15 DSGVO. Abschließend werden konkrete Regulierungsimplikationen diskutiert.
Unsere interdisziplinäre Forschungsarbeit „Die Gestaltung wirksamer Bildsymbole für Verarbeitungszwecke und ihre Folgen für Betroffene“ („Designing Effective Privacy Icons through an Interdisciplinary Research Methodology“) baut auf dem „Data Protection by Design“-Ansatz (Art. 25(1) DSGVO) auf und zielt auf folgende Forschungsfragen ab: Wie müssen das Transparenzprinzip (Art. 5(1)(a) DSGVO) und die Informationspflichten (Art. 12-14 DSGVO) insbesondere im Hinblick auf die Festlegung der Verarbeitungszwecke (Art. 5(1)(b) DSGVO) umgesetzt werden, damit sie die Nutzer:innen effektiv vor Risiken der Datenverarbeitung schützen? Mit welchen Methoden lässt sich die Wirksamkeit der Umsetzung ermitteln und diese auch durchsetzen?1 Im vorliegenden Projekt erweitern wir juristische Methoden um solche aus der HCI-Forschung (Human Computer Interaction) und der Visuellen Gestaltung. In einer ersten Phase haben wir mit empirischen Methoden der HCI-Forschung untersucht, welche Datennutzungstypen Nutzer:innen technologieübergreifend als relevant empfinden. Diese Erkenntnisse können als Ausgangspunkt für eine neue Zweckbestimmung dienen, die bestimmte Datennutzungstypen deutlicher ein- oder ausschließt. Erste Umformulierungen von Zweckbestimmungen haben wir in zwei Praxisworkshops mit Verantwortlichen der Datenverarbeitung getestet. In einer darauffolgenden qualitativen Studie untersuchten wir dann die Einstellungen und Erwartungen von Internetnutzerinnen und -nutzern am Beispiel der Personalisierung von Internetinhalten, um die entsprechenden Zwecke anhand eines konkreten Beispiels, in unserem Fall der personalisierten Werbung, neu zu formulieren. Auf dieser Basis haben wir nun die zweite Forschungsphase begonnen, in der wir Designs für Datenschutzhinweise und Kontrollmöglichkeiten unter besonderer Berücksichtigung des Verarbeitungszwecks entwickeln. Da der Einsatz von Cookies eine wichtige Rolle bei der Personalisierung von Werbung spielt, ist eine zentrale Aufgaben die Neugestaltung des sogenannten „Cookie-Banners“.